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The Hydrocephalus Family Support Group is a non-profit organization founded in 1998 by parents of children with Hydrocephalus. Hydrocephalus occurs when the brain cannot absorb its cerebrospinal fluid (CSF). Pressure builds within the cavities of the brain (ventricles) and if left untreated, can result in brain death. In most instances, Hydrocephalus is a lifelong condition (i.e., a patient is “treated” rather than cured). The most common treatment involves brain surgery. A neurosurgeon implants a shunt within the brain to help drain the accumulated fluid to another part of the body, thus allowing for healthy growth and development. Unfortunately some of our children have to undergo this procedure several times a month or year as needed. infection is always a worry with this type of surgery. Many of our children also have various other problems besides Hydrocephalus, such as Spina Bifida, and require other surgeries or physical therapy. On our site we have included our calendar of events, contact information, our research goals, as well as general helpful information. The Hydrocephalus Family Support Group’s mission is to increase understanding and awareness and to provide a forum for families to learn, voice concerns, and share experiences. SEE CALENDAR FOR MEETING DATES & TIMES MEETINGS ARE HELD AT THE OFFICES OF :
Childhood Neurosurgery
& Center for Hydrocephalus
Disclaimer: This site is directed towards parents of children and adults who have hydrocephalus. Inclusion of any resource or websites does not imply Hydrocephalus Family Support Group’s Endorsement. Any medical or healthcare reference or advice is intended for informational purposes only. If you have any questions relating to you/your child’s condition, please consult your doctor |
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